that was not my experience this summer at all
the doctor after being in palliative care for over 20 years was fearful of administering too many meds and did not like to be questioned
the dying was a nurse who begged, and pleaded to die
nope
she wasted away to nothing and died in screaming agony at under 70 lbs with a massive abdominal tumour that created agony even when they placed her into a "sleep coma"
it was beyond inhuman what this poor woman suffered...had she known it would end this way she would have offed herself weeks before
it was the doctor's care...I NEVER want to see that doctor again and there may well be legal action
conclusion....plan all you want, but **** happens....if I get ANY kind of abdominal cancer I will not leave it up to the medical profession to decide my level of suffering, I will end it swiftly myself
what are they gonna do, punish me? screw them
I am sorry for her (and your!!!!)agony.
Palliative care or hospice? There can be an amazing difference.
If the patient is on comfort care the patient should have been given enough medication to manage the pain. I would say that was an awful doctor. But like I said, there is a difference between palliative care and hospice.
Palliative care can be administered to people whom they are still actively treating.
So the idea is that if you are still being treated for your disease (trying to improve your condition) they will keep in mind that you are seeking this end over death and will be more reluctant to give an amount of medication that would make the patient hemodynamically unstable.
In hospice - where improvement or cure of condition is not the goal the hemodynamic situation (read blood pressure, breathing etc) is no longer a concern.
What you stated would be well outside of the norm for hospice.
By the way. I have clearly and emphatically stated I am in favor of assisted suicide. emphatically. With the caveat that the person requesting be in a mental condition where they personally are able to legally consent - no DPOA, next of kin, or living will.
But I am anguished that she went through that . It should never have happened like that if she was on comfort care.
Also, after over 30 years of critical care, I have never heard the term "sleep coma" do you know what they used? I am curious what that is.
If I was the nurse and a comfort care or hospice patient was writhing in pain and the doctor would not help, I would immediately go up the chain of command. That being said....I have never ever encountered such am atrocious situation.
And with two family members on hospice this year - one in hospital then home...one on home hospice only...the safeguards for comfort were multilayered and there were contingency plans in place. If It matters, one had great insurance and the other had Medicaid (for the indigent). They both got treated the same...with the same safeguards.
But again, I am clearly in favor of assisted suicide with the caveats I mentioned earlier,