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It sounds heartwarming, if not for the reality of the repealing of the ACA thingy

Peter King

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The story sounds heart warming, President Bush says he wants to help the parents of a British boy of 10 months old with a terminal illness of which the courts have decided that the machines keeping him alive are allowed to be switched off, even against the wishes of the parents.

The parents wanted the child to go to the US for some experimental treatment but the doctors disagreed and did not see it as in the best interest of the child. So the parents took it to the courts in the UK and lost. After exhausting their UK legal options they went into the EU court and again they lost, the court siding with the doctors.

The child has mitochondrial DNA depletion syndrome, this means the kid has significantly less mitochondrial dna than regular people. This mitochondrial dna converts food into the cells energy needs. Charlie has not enough of this DNA to keep his muscles, brain and kidneys properly supplied with energy. He needs a tube to eat (cannot swallow) and needs ventilation because he cannot breathe on his own.
In fact, Charlie cannot see, he cannot hear, he cannot make a noise and he cannot move."

The hospital in the US who would want to treat him has had (is said) one other small success which would lengthen the life expectancy. The parents started a go fund me page and raised tons of money but the doctors refused to send him because the UK doctors labelled him as terminal. The parents even had the US doctor come for the court case but he also said that the treatment is unlikely to work. The doctor was quoted in the UK high court ruling in which he was recorded as saying:

“I agree that it is very unlikely that he will improve with that therapy. It is unlikely,”

But now Trump and the Pope are getting involved. And now I agree that the Pope is free to say whatever he wants, but Donald Trump is waging war with the republicans against the ACA and their proposals would see tens of millions loosing their health care and most likely will cost thousands and thousands of Americans their lives. Now if Obama had made the statement supporting the parents plight I would not have an issue, the same goes with Bush 2, but Trump is causing millions of people to loose their healthcare for a big tax break (mostly for rich people) so for him to make this statement is not proper.

Real people in the US are risking their health care and their health, people will die because of this law, more people than would normally die if the repeal did not happen, why does Trump not save their lives and their health care rather than interfering in the legal process in the UK/Europe?

Trump talks a lot about making America great again (nonsense, it has always been great) but for the life of me I cannot see how taking children in the US out of health care is going to make America greater and I also do not see how this poor child's life is going to get better with the interference of one Donald Trump.

I am going to err on the side of not being a cynical bastard and giving into the idea that this is a PR move, I am going to give Donald Trump the benefit of the doubt and believe he is doing this out of true compassion for the child and the parents (even if this compassion might be misguided) but I really wonder what is in it for this child? Not a whole lot IMHO.

Trump offers help to terminally ill U.K. boy - POLITICO

Charlie Gard: 5 Fast Facts You Need to Know
 
Politicians should never intervene in these things. It's disgusting when Bush did it. It's disgusting if Obama did it. It's disgusting now that Trump is doing it.
 
Mind Boggling.They won't even let the parents take their child home to die? Doctors should have no say in the matter - if you can't help, then GTFO of these people's lives!!
 
Mind Boggling.They won't even let the parents take their child home to die? Doctors should have no say in the matter - if you can't help, then GTFO of these people's lives!!

The child does not even have a concept of what a home or anything is except most likely for pain, he has no senses, and it would be possibly millions in hospital equipment that would have to be moved.
 
The child does not even have a concept of what a home or anything is except most likely for pain, he has no senses,
His parents sure do. That's all that matters.

and it would be possibly millions in hospital equipment that would have to be moved.
Portable ventilators do not cost "millions" - and the couple has raised more than enough money to cover any costs.
 
Mind Boggling.They won't even let the parents take their child home to die? Doctors should have no say in the matter - if you can't help, then GTFO of these people's lives!!

The doctors and the government have a duty of care to the child.

If parents are unable or unwilling to act in the best medical interest of a child, sometimes the government has to step in.
 
The doctors and the government have a duty of care to the child.

If parents are unable or unwilling to act in the best medical interest of a child, sometimes the government has to step in.
Im really confused about your position in the OP. I have to be missunderstanding something about it.

1. Your upset that the gov is making medical choices for that kid
2. Your happy that the US wants to intervene and honor the parents wishes
3. But trump should not get any credit for putting the individuals parents wishes before universal health cares decission but he should not get credit for it because he supports repealing aca which is another verison of universal health care
4. And in this post your defending universal healthcare deciding to not fullfill the parents wishes to take the child home

Im sorry im having a hard time understanding your position and the point of this thread. You seem like your on both sides of the issue. What am i not getting?

Sent from my SM-G920P using Tapatalk
 
The story sounds heart warming, President Trump says he wants to help the parents of a British boy of 10 months old with a terminal illness of which the courts have decided that the machines keeping him alive are allowed to be switched off, even against the wishes of the parents.

The parents wanted the child to go to the US for some experimental treatment but the doctors disagreed and did not see it as in the best interest of the child. So the parents took it to the courts in the UK and lost. After exhausting their UK legal options they went into the EU court and again they lost, the court siding with the doctors.

The child has mitochondrial DNA depletion syndrome, this means the kid has significantly less mitochondrial dna than regular people. This mitochondrial dna converts food into the cells energy needs. Charlie has not enough of this DNA to keep his muscles, brain and kidneys properly supplied with energy. He needs a tube to eat (cannot swallow) and needs ventilation because he cannot breathe on his own.
In fact, Charlie cannot see, he cannot hear, he cannot make a noise and he cannot move."

The hospital in the US who would want to treat him has had (is said) one other small success which would lengthen the life expectancy. The parents started a go fund me page and raised tons of money but the doctors refused to send him because the UK doctors labelled him as terminal. The parents even had the US doctor come for the court case but he also said that the treatment is unlikely to work. The doctor was quoted in the UK high court ruling in which he was recorded as saying:



But now Trump and the Pope are getting involved. And now I agree that the Pope is free to say whatever he wants, but Donald Trump is waging war with the republicans against the ACA and their proposals would see tens of millions loosing their health care and most likely will cost thousands and thousands of Americans their lives. Now if Obama had made the statement supporting the parents plight I would not have an issue, the same goes with Bush 2, but Trump is causing millions of people to loose their healthcare for a big tax break (mostly for rich people) so for him to make this statement is not proper.

Real people in the US are risking their health care and their health, people will die because of this law, more people than would normally die if the repeal did not happen, why does Trump not save their lives and their health care rather than interfering in the legal process in the UK/Europe?

Trump talks a lot about making America great again (nonsense, it has always been great) but for the life of me I cannot see how taking children in the US out of health care is going to make America greater and I also do not see how this poor child's life is going to get better with the interference of one Donald Trump.

I am going to err on the side of not being a cynical bastard and giving into the idea that this is a PR move, I am going to give Donald Trump the benefit of the doubt and believe he is doing this out of true compassion for the child and the parents (even if this compassion might be misguided) but I really wonder what is in it for this child? Not a whole lot IMHO.

Trump offers help to terminally ill U.K. boy - POLITICO

Charlie Gard: 5 Fast Facts You Need toÂ*Know

What a mistake of mine, sorry, it should be Trump, not Bush of course.
 
Im really confused about your position in the OP. I have to be missunderstanding something about it.

1. Your upset that the gov is making medical choices for that kid
2. Your happy that the US wants to intervene and honor the parents wishes
3. But trump should not get any credit for putting the individuals parents wishes before universal health cares decission but he should not get credit for it because he supports repealing aca which is another verison of universal health care
4. And in this post your defending universal healthcare deciding to not fullfill the parents wishes to take the child home

Im sorry im having a hard time understanding your position and the point of this thread. You seem like your on both sides of the issue. What am i not getting?

Sent from my SM-G920P using Tapatalk

1. No, I am not, at times when parents are unwilling or mentally unable to make the best decisions for a child, an advocate/representative can be appointed for a child and if a judge, based on all relevant information makes a choice about the medical choices of a child (if they are in the best interest of the child) I have no problem with that.

2. No, I am not happy that the US wants to intervene, the courts have spoken and there is no need to drag out the suffering of this child any further

3. Trump should not interfere, he is a politician who has no case knowledge (or should I say sufficient case knowledge to interfere in a legal procedure/decision in Europe/whatever country) so he should not get credit for that. And my issue is that he wants to help a child that is beyond help while condemning US children to a live without healthcare.

4. And in this post I am defending the choices made for the child and to let it die in peace, I could not care where this happens (at home/hospital/care facility) as long as the best interest of the child are upheld/respected.

And the point of this thread is that even well willing politicians should not interfere in medical decisions or court decisions where they have no business interfering in.
 
1. No, I am not, at times when parents are unwilling or mentally unable to make the best decisions for a child, an advocate/representative can be appointed for a child and if a judge, based on all relevant information makes a choice about the medical choices of a child (if they are in the best interest of the child) I have no problem with that.

2. No, I am not happy that the US wants to intervene, the courts have spoken and there is no need to drag out the suffering of this child any further

3. Trump should not interfere, he is a politician who has no case knowledge (or should I say sufficient case knowledge to interfere in a legal procedure/decision in Europe/whatever country) so he should not get credit for that. And my issue is that he wants to help a child that is beyond help while condemning US children to a live without healthcare.

4. And in this post I am defending the choices made for the child and to let it die in peace, I could not care where this happens (at home/hospital/care facility) as long as the best interest of the child are upheld/respected.

And the point of this thread is that even well willing politicians should not interfere in medical decisions or court decisions where they have no business interfering in.
Ty for clarifying. I knew i was missing something. Now that youve explained yourself, it makes more sense.

Sent from my SM-G920P using Tapatalk
 
The doctors and the government have a duty of care to the child.

If parents are unable or unwilling to act in the best medical interest of a child, sometimes the government has to step in.
I guess you get what you pay for when it comes to healthcare. I'm just glad I don't live in the UK.
 
I guess you get what you pay for when it comes to healthcare. I'm just glad I don't live in the UK.

:lamo

You mean the system where virtually all health care is free and professional?

And the level of health care is reasonably to very good (and affordable).
 
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