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Thread: C-pap

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    Re: C-pap

    Quote Originally Posted by HumblePi View Post
    Yes that ascending pressure was always an option, even in 2004. The big improvements in CPAP have been that they're much smaller. They always need a water reservoir to add humidity. They're very quiet. They do require some maintenance and the mask and tubing needs to be cleaned every couple of days. The funniest thing is when someone wearing a CPAP tries to talk while wearing it. There's a vacuum created by the mask in the nose, so opening the mouth causes a big gulp of air to fill your throat and you can barely speak.
    What are the maintenance requirements? I have seen tv ads for C-PAP cleaning machines. If water/humidity is used there will probably be mold/mildew buildup. What are the reoccurring costs?
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    Re: C-pap

    Quote Originally Posted by Rexedgar View Post
    What are the maintenance requirements? I have seen tv ads for C-PAP cleaning machines. If water/humidity is used there will probably be mold/mildew buildup. What are the reoccurring costs?
    Those machines are expensive. 'SoClean' runs around $500 and not reimbursed by insurance. A simple cleaning with warm soapy water with something like Dawn dish-washing liquid works fine. The only two parts that need to be cleaned are the parts that trap moisture like the water tray, mask and tubing. Rinsing the tubing out with soapy water and then a good rinse, then hang it up to dry from the shower head, or just connect it to the CPAP and blow it dry. The home respiratory company will sell you a bottled cleaner to use but it's pretty costly.










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    Re: C-pap

    Quote Originally Posted by HumblePi View Post
    I was manager of a district office for a national home respiratory company. I guess I could say with all probability that I know more about CPAP and Oxygen home therapy than most. I assume you've already had your sleep study.
    The VA gave me my sleep study, and sure enough, a few minutes in, they came in and tried to fit me with a C-PAP.
    It triggered an immediate reaction which I can only describe as what I would imagine would be a reaction to being waterboarded.
    I had no control over my airway, and it triggered a fight or flight reaction.

    I would love it if I could find a C-PAP that had enough sophistication that it could detect my normal inhale-exhale cycle and just add a little bit of gentle assistance. The unit they tried on me felt like a vacuum cleaner.

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    Re: C-pap

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    Re: C-pap

    Quote Originally Posted by Rexedgar View Post
    I’ve been told that I need to use a C-PAP rig when sleeping. Anyone using this equipment and has it made an improvement in your life?
    I have not but have many friends who do. If you want a good night's sleep and want to wake up feeling much better everyday, use the machine.

    FWIW, I'm waiting to be evaluated myself and suspect I'll need one too.
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    Re: C-pap

    Quote Originally Posted by Checkerboard Strangler View Post
    The VA gave me my sleep study, and sure enough, a few minutes in, they came in and tried to fit me with a C-PAP.
    It triggered an immediate reaction which I can only describe as what I would imagine would be a reaction to being waterboarded.
    I had no control over my airway, and it triggered a fight or flight reaction.

    I would love it if I could find a C-PAP that had enough sophistication that it could detect my normal inhale-exhale cycle and just add a little bit of gentle assistance. The unit they tried on me felt like a vacuum cleaner.

    I wish I could sit down with you as a consultant to navigate through the choices.
    It sounds as though your pressure settings were too high. It's difficult at first because your mouth has to be closed in order for the CPAP to work. 'CPAP' stands for 'continuous positive airway pressure'. The pressure settings are actually a prescription that's determined by the sleep lab when the sleep study is done. The pressure should only be high enough to keep your airway open. You may have just needed a pressure setting adjustment. You could also try 'nasal pillows', they're less claustrophobic. But I've known many patients that only use a full face mask. I'll put the images here to see the differences. Finding the right mask for you is going to help with compliance of using it. Your respiratory company will help you try several types to see what fits best.

















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    Re: C-pap

    [QUOTE=HumblePi;1071012331]I was manager of a district office for a national home respiratory company. I guess I could say with all probability that I know more about CPAP and Oxygen home therapy than most. I assume you've already had your sleep study.

    Short story, my husband went for a sleep study back in 2004, his oxygen levels desaturated down to 40% during an apnea episode (stop breathing). When someone sleeps on their back, their tongue falls back obstructing the airway. That's why people don't usually snore while on their side.

    During his sleep study, my husband had so many episodes in one hour that they stopped the sleep study and hooked him up to CPAP. He received his CPAP at home with a visit from a respiratory therapist. She set it up with the appropriate pressure settings. These settings are ordered by a physician. The first week or so, I would hear the CPAP mask flying through the air and hitting the bedroom wall. To put this another way, it takes a few days to adjust to the mask.

    The secret to adherence with using a CPAP is choosing the right mask for yourself. They're small, usually only covering the nose. Some prefer nasal 'pillows' which is less intrusive but it has two soft prongs, they fit into each nostril. My husband didn't like it so he uses a small nasal mask.

    Here's the benefit. You won't doze off frequently during the day because you're always tired because you never reach REM sleep when you have obstructive apnea. Once you settle down and get used to the CPAP even if you start with just a couple of hours each night, you'll be sleeping soundly and getting that REM sleep people need to feel rested.

    Once you're comfortable with it, you will never want to sleep without it again. One more thing. It happens that some people 'die in their sleep' and I'm convinced that these people may have had obstructive sleep apnea which caused oxygen depletion which may have created a coronary event. Just my opinion. The big bonus is that you will never snore again so the wife gets a better night sleep too.

    Good luck.

    eta: one more thing I forgot to mention. There is no oxygen running through CPAP it's nothing more than ambient room air. Of course in more serious medical conditions, oxygen can be bled into the CPAP but that's not the norm.[/QUOTE]

    I was thinking of purchasing a CPAP with a cleaner stand and an oxygen concentrator for my father since he is renting his, any advice on things to check his prescription for? or is it just comfort of mask and allow him to adjust the unit to the settings he needs?
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    Re: C-pap

    [QUOTE=jdog21;1071012990]
    Quote Originally Posted by HumblePi View Post
    was thinking of purchasing a CPAP with a cleaner stand and an oxygen concentrator for my father since he is renting his, any advice on things to check his prescription for? or is it just comfort of mask and allow him to adjust the unit to the settings he needs?
    It's nearly impossible for someone to adjust the pressure settings on a CPAP. Those machines are made that way so people can't fool with their pressure settings. The company that set up his CPAP originally has those pressure settings. It's an actual doctor's prescription. One thing about buying an oxygen concentrator, usually, if a patient is on Medicare, it's covered for a monthly rental by Medicare for 36 months, and included in that rental are supplies like tubing and nasal cannula plus service by the respiratory company for an additional 24 months after it reaches the purchase price. Those machines need regular maintenance and if you outright own one, that service wouldn't be covered any longer and if it has a mechanical failure you're pretty much out the $1000 to $2500 and would have to purchase or rent another. When it's on a monthly rental schedule it's serviced regularly. Those have to be titrated to make sure they're putting out at least 88% oxygen. Filters have to be changed, etc. So, I wouldn't recommend purchasing the unit outright.










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  9. #29
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    Re: C-pap

    Quote Originally Posted by Rexedgar View Post
    Iíve been told that I need to use a C-PAP rig when sleeping. Anyone using this equipment and has it made an improvement in your life?
    Iíve been using one for 5 years, and itís been great for my sleep quality. For years and years I donít remember ever dreaming, but once I started using a CPAP I dream pretty regularly. The hardest part is getting used to sleeping with the mask on your face. That will take a couple of weeks.
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    Re: C-pap

    [QUOTE=HumblePi;1071013075]
    Quote Originally Posted by jdog21 View Post

    It's nearly impossible for someone to adjust the pressure settings on a CPAP. Those machines are made that way so people can't fool with their pressure settings. The company that set up his CPAP originally has those pressure settings. It's an actual doctor's prescription. One thing about buying an oxygen concentrator, usually, if a patient is on Medicare, it's covered for a monthly rental by Medicare for 36 months, and included in that rental are supplies like tubing and nasal cannula plus service by the respiratory company for an additional 24 months after it reaches the purchase price. Those machines need regular maintenance and if you outright own one, that service wouldn't be covered any longer and if it has a mechanical failure you're pretty much out the $1000 to $2500 and would have to purchase or rent another. When it's on a monthly rental schedule it's serviced regularly. Those have to be titrated to make sure they're putting out at least 88% oxygen. Filters have to be changed, etc. So, I wouldn't recommend purchasing the unit outright.
    Mine is made by Phillips and the pressure settings are fairly simple to change. Just have to get into the maintenance menu. My pulmonologist recommended I increase the pressure a couple of times.
    "I believe in a Spinoza's God who reveals himself in the harmony of all that exists, but not in a God who concerns himself with the fate and actions of human beings."

    --Albert Einstein, 1929

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